MadeLyme Blog

Journaling My Life with Lyme

The Beginning

In June of 2012, we visited a petting zoo in the Florida Keys (pictured above). The next night, we ended up in the ER with a rash that would overtake Madeline’s body. The doctor administered medication and sent us home. He said it could be from the palm tree she climbed the evening before and told us to stay away from palm trees and products that contain palm oil. Fast forward four years later when Madeline would begin to experience excruciating pain in her knees. We thought it was growing pains and tried to take care of it with warm baths, massage and OTC medications. The pain worsened and she became fatigued all the time. This was very abnormal for her and I knew something else was wrong. After two separate doctor visits and a lot of lab work, she was diagnosed with Epstein Barr Virus and told “to rest.” Something did not sit well because she had been “resting” for 18 months. I knew my baby was sick. A good friend of mine approached me with the possibility of Lyme Disease. She and her daughter were both in remission and she recognized Madeline’s symptoms. She encouraged me to get an iGenex test and seek out an LLMD (Lyme Literate Medical Doctor). I did, and two of the bands came back ++ (double positive). I immediately made an appointment with a doctor in Orlando and off we began on our Lyme journey. Finally, in June 2018, Madeline was officially diagnosed with Lyme as well as Chronic Epstein Barr and Chronic Mycoplasma. She remains under his care and we are still trying to piece together the puzzle of Lyme and treat the many co-infections associated with these horrible disease. Unfortunately, insurance does not cover the treatment of Lyme and many children and adults are suffering. Thankfull, Madeline was a recipient of a grant through LymeLight Foundation and has been able to continue treatment.  Inspired by this, Madeline wants to help others with the costs of treatment and eventually raise funds for service dogs for kids with Lyme. Join us on our journey!

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